Pagans and Wiccans with Disabilities

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Comment by Suzanna Schroeder on August 10, 2014 at 23:23

I consider myself an agnostic pagan on my own path.  I feel what I feel but I am not really sure of anything anymore.

Comment by Dr. Gareth Pengwerin on August 10, 2014 at 4:40

Hi Bree,

Fibromyalgia to me means pain - you have my sympathy.  Ho do you address me?  Never mind the Doctor as we are all in the same boat here - call me Gareth.

UK is supposed to be hit by storms today so I'm going to buckle in to my wheelchair and take an extra pile of dope!  If you see me floating by in the Irish Sea just grab my hand and haul.  lol

Gareth

Comment by Suzanna Schroeder on August 9, 2014 at 20:15

Aspie is Asperger's Syndrome.  Higher functioning Autism.  Also have a birth defect, bipolar, petite mal seizures, ocd, fibro.  That is just part of it.  And 3 kids at home.  My dad keeping yelling at my teenager about my therapy animals and I work in call center.  Not the best job but I was never able to finish college and I can't get a job away from people.

Comment by Dr. Gareth Pengwerin on August 9, 2014 at 19:11

Hello Bree,

I've seen this happen in other groups when all things seem to have gone down a black hole and the event horizon has been covered with a massive cobweb!

Perhaps everyone has been preoccupied with personal problems or haiati in their lives.  Although I swing around the house as a double amputee with heart & lung problems and renal sub-total failure, I still managed to pick up an award of a third Fellowship at the age of 78.

That was two two months before I landed in hospital with pneumonia. So I'm back out and rockin' on ready to celebrate my 30th wedding anniversary to my dear lady in October.

How's the news at your end, Bree.  What are you health problems and are you managing to do a bit of 'kick ass' in their direction?

Have a quiet Sunday,

Best wishes,

Gareth

Comment by Suzanna Schroeder on August 9, 2014 at 19:04

I am fighting for sanity right now.  I had an Aspie meltdown at work on Thursday and I am still trying to recover.

Comment by Christopher Blackwell on February 4, 2014 at 13:29

Bree,

Also I think that I am very lucky, for it could have ended with just giving up, in which neither of us would have survived so long. I think I am lucky to have lived with him and watched how he dealt with a very difficult situation.

Comment by Christopher Blackwell on February 3, 2014 at 12:47

Bree,

The amazing thing is that I am not having a rough time, even in the midst of this. We don't find out our secret strengths until we are put to the test. Life has often been rough for me, what continues to amaze is that I am still here and still functioning, still find life interesting still have important things too do. ACTION, the e-zine that I do each sabbat still goes out on time or early in spite of everything that happens, even one year of five eye operations.

In many ways it seems to be as important to me as my partner's writing was to him. He wrote a rather scientific book after he had lost all but 23% of his lungs. It took four years just to research and write and several more years to find a publisher that would print it out the way he wanted it, with all the color pictures where the information was. He got his Geode Collection, all eight 8 foot long cases of it, into the local museum and put it all back tougher by himself, again with only 23% of his lung capacity. He used his computer to redo all the signs for the collection, to replace the hand write ones  he had originally. He had to learn the computer in spite of being dyslexic.

As he slowly lost more of his lung capacity, he wrote four volumes of his mining adventures, in fact was doing the fifth one when his health suddenly crashed and he had to go to a nursing home, no longer able to get out of bed. He had spent 6 to 8 hours a day on his computer, with me helping him back and forth from bed to computer making sure that 25 feet of air tubing did not get tangled. His research , memory and writing kept him going for over 17 years.

So I have him as an example of how to handle very difficult health issues. Even with my health issues, I was the healthy one of the two.

The day I went to work with him 38 years ago, he had just discovered that he had three crushed disks that he could not afford to do anything about, so he livid with a great deal of constant pain the entire time that I knew of him. In spite of that he did an incredible amount of mining and left behind a remarkable legacy.

Part of my job is to maintain the legacy and  to keep telling his story, while also finding useful things for me to do with my time, in spite of health issues or age. That life is often rough is a given. The question is still what are you going to do with the life you have? If your life does not crush  you, the it will make you incredibly strong.

Comment by Christopher Blackwell on February 2, 2014 at 20:31

Glad to see some life here. For some reason I cannot no longer get i touch with Yahoo Groups and all the forums that I used to attend there and this has been going on for a month.

Other major change was the passing of my partner with his last case of pneumonia back in November. Of course this has been coming on for seventeen years since his first case of pneumonia. So not totally unexpected The last months since June had been rather horrible for him, so passing is a relief as he is no longer suffering.

I seem to wobble a lot more than I used to, but that to is not exactly unexpected, as I have been using a walker for years. Just in the last three months it has become noticeable and sometimes even while using the walker. I used to be pretty stable when using the walker Inside, where I don't usually use it it, appears that I no longer seem to walk anything like a straight line most of the time. So I do have to watch what I do a bit more.

However otherwise, life continues to go on. I seem to have lost about ten pounds of weight, so I have the unusual problem of probably having to eat a bit more to hold my weight or perhaps to bring it back up. I had not noticed the weight loss, because I rarely weigh myself, usually I note weight gain by how my waist band feels . I can and have moved up and down ten pounds, just the first time to move down without trying for it.

Strange to be 168. It has been about twenty years since the last time I weighed this weight while trying to get back to normal weight of 175 after that long sickness that kept me in the hospital for over a year. Meanwhile I better heat up my supper, I would not want to fade way

Comment by Dr. Gareth Pengwerin on January 24, 2014 at 11:03

Hello, folks.  I'm a double aputee with multiple health problems but luckily I can adapt spacialy with considerable ease.  The worst thing I found wass the cost of special electric chairs, stair lift, bathroom conversion to wetroom and heaven knows what other odds and ends!  Very little help for all this in UK but I wonder how you fair in the USA for external funding.

My symapthy goes out to all in similar circumstances but be determined to see the end of each day rather than it see the end of you.  I've just read the posts and congratulate you all for your fortitude and positivity.

Comment by Wind Fire SOLODRE on October 24, 2013 at 23:25

 Hello I am glad too see this because I have Multiple Sclerosis, and at times I get pain in my legs, muscle spasms, Ill loose my balance, and or I need a cane. at times I will get nervous walking my circle because I'll get vertigo outa no where. I will check these sites out though, thank you for sharing these sites.     

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